Kevin Jordan

Dying to Live: A Guide to Living with Motor Neurone Disease

Dying to Live: A Guide to Living with Motor Neurone Disease by Kevin Jordan
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  1. Dying to Live - Prologue - About This Book
  2. Dying to Live - Chapter 01 - The Fall
  3. Dying to Live - Chapter 02 - Carla
  4. Dying to Live - Chapter 03 - Sidelines
  5. Dying to Live - Chapter 04 - Looking Back
  6. Dying to Live - Chapter 05 - Nothing to Lose
  7. Dying to Live - Chapter 06 - Rugby and Me
  8. Dying to Live - Chapter 07 - Hello My Love
  9. Dying to Live - Chapter 08 - Choices
  10. Dying to Live - Chapter 09 - Looking Inward
  11. Dying to Live - Chapter 10 - Keeping the Glass Half Full
  12. Dying to Live - Chapter 11 - Laura and John
  13. Dying to Live - Chapter 12 - Luke
  14. Dying to Live - Chapter 13 - Trevor
  15. Dying to Live - Chapter 14 - Susan
  16. Dying to Live - Chapter 15 - Alan
  17. Dying to Live - Chapter 16 - Making a Difference
  18. Dying to Live - Chapter 17 - Looking Forward
  19. Dying to Live - Chapter 18 - Reflections
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Description

How much more time do I have left?

I fell for the second time yesterday. Am I deteriorating more quickly than I thought? I will have to be fed. I will have to be helped on the toilet. These thoughts churn in my mind. For the first time I have a genuine fear of what is to come.

I’ve held it together until this point, but processing all the information about the future is too much. I can’t stop the tears. How much longer will I still be able to walk? To speak? To act normally?

It has been nearly eight years since I was diagnosed with Motor Neurone Disease (MND). When I started writing this book four years ago, I was full of anger, anxiety, fear and frustration. I have changed. It has been a journey of self-discovery, forgiveness of myself, as well as love and acceptance of others.

This is my story about living with MND. But more than that, this is a book about hope, love, spiritual fulfilment, and the lessons I’ve learned on this journey.

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